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Eric, Shelly, & Charlie
Hearing your child has cystic fibrosis is something no parent wants to hear. Unfortunately, Shelly and I received this news about our beautiful baby girl, Charlie Kate. Here are a few details about the disease and a few ways you can help if you’re interested.
CF is a rare, progressive, genetic, disease that causes persistent lung infections and limits the ability to breathe over time as well as a variety of other health challenges.
Shockingly, 1 in 35 Americans is a symptomless carrier of the defective CF gene. If mom and dad are both carriers, they have a 1 in 4 chance of having a child with CF.
When the Cystic Fibrosis Foundation was established around 60 years ago, people born with the disease weren't expected to live to attend elementary school. Today, because of the efforts of the Foundation, people with CF are living into their 30s, 40s, and beyond.
Donating, educating yourself, educating others, and getting involved with the Cystic Fibrosis Foundation are all great ways to help make an impact in the lives of those who battle cystic fibrosis everyday.