Team Jordy

A lot of happened since the last Great Strides. Jordy has gotten access to the “miracle” drug Trikafta. We just got results this past week that his body is responding tremendously after just 1 month of therapy. We are awaiting results of most recent tests. 

The past 12 months has been full of growth for all of us! A few years ago, I never thought we would be able to safely take Jordy an airplane for vacation, take him swimming, or to other public events. All of which we’ve been able to do! 

While we only typically share the “highlights” of Jordy - so much goes on behind the scenes to keep him healthy and make all the fun possible. A million medications, countless doctor appointments, blood draws & over 650 minutes spent in his airway clearance vest. 

We are only able to accomplish all of this with the help & support of our family, friends and care team. 

While our family is extremely grateful for Trikafta & the freedom is has given us, we cannot accept that this is the best that will be available during Jordy’s lifetime. For this reason, we will continue to do our part in raising awareness & funds for the Cystic Fibrosis Foundation! 

Thank you for your continued support! 

With love, 

The Clairs 

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Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.

With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.  

We walk in Great Strides for them.

Will you join us?

Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.

To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.

By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!