As most of you know, my daughter, Carly has Cystic Fibrosis. She was diagnosed at the age of 2 and now is a thriving 29 year old wife and mother of a beautiful baby boy who just turned 1.
Carly has been taking a medication called Trikafta for 3 years now and we attribute her continued health and to becoming a mother, when she thought she would never be able to have children, to this drug and to her CF medical team. Trikafta is one of the many drugs that your past donations have helped researchers develop and has just recently been approved for younger children.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting and helping me reach my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Thank you my Facebook friends for your time and in advance of your support. Special hugs to all of you.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.