Alexxa was born on November 17, 2004. She was immediately the light of our lives. We knew something wasn’t quite right and started to become very concerned, as did family and friends. On August 2, 2006, our lives were forever changed when Lexx was diagnosed with Cystic Fibrosis. We had never even heard of the disease, yet we were devastated.
About the Disorder
Cystic Fibrosis is a genetic disorder that you are born with. Your body needs water and salt to work and grow. Water and salt move through tiny cells in your body. In people with CF, water and salt can not move through the tiny cells easily which makes it dry. The body then produces thick, “icky, sticky stuff” called mucus. Mucus forms in the lungs, which helps you breathe, and the pancreas, which helps you digest your food. Mucus sticks in your lungs and throat and makes you cough. Mucus is also a friendly home for germs and bacteria which can make you sick.
About our Blessing
Fortunately, God has blessed us tremendously. Alexxa is surpassing everyone’s expectations! We thank God everyday for our little girl, and pray continuously for a cure. Join us in fighting for a cure and making CF lives better!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.