About our Girl
Alexxa was born on November 17, 2004. She was immediately the light of our lives. We knew something wasn’t quite right and started to become very concerned, as did family and friends. On August 2, 2006, our lives were forever changed when Lexx was diagnosed with Cystic Fibrosis. We had never even heard of the disease, yet we were devastated.
About the Disorder
Cystic Fibrosis is a genetic disorder that you are born with. Your body needs water and salt to work and grow. Water and salt move through tiny cells in your body. In people with CF, water and salt can not move through the tiny cells easily which makes it dry. The body then produces thick, “icky, sticky stuff” called mucus. Mucus forms in the lungs, which helps you breathe, and the pancreas, which helps you digest your food. Mucus sticks in your lungs and throat and makes you cough. Mucus is also a friendly home for germs and bacteria which can make you sick.
About our Blessing
Fortunately, God has blessed us tremendously. Alexxa is surpassing everyone’s expectations! We thank God everyday for our little girl, and pray continuously for a cure. Join us in fighting for a cure and making CF lives better!
#CFFighter
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.