Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
We stride for my brother and uncle, Greg, who was not diagnosed with CF until he was 31. At the time, the average life span of a person with CF was 31-32 years old. Greg only let this diagnosis get him down for a bit, then his fighting nature took over and he was determined to live. He had good days, he had bad days, but he loved his family and friends. He passed away at the age of 46. My daughter and I formed the team Greg’s Legs back in 2005, after learning about Great Strides. Great Strides is a way for us to carry on my brother’s memory. After the first walk we attended at the Tulsa Zoo, we wanted to form a team. My grandsons came up with the name Greg’s Legs, since he was not physically able to walk for a long distance and we would be his legs doing the walking. I also wanted people to know who Greg was. I made a badge with his picture and told him about it. He told me, “No, I don’t want my picture out there. I’m private.” I explained why I wanted to do this but he remained adamant. Until the morning of the walk, he called and asked me if I still had the badge. He said, “Go ahead and wear it, show my picture, maybe some good will come of it.” So I wear my brother’s picture, not the face of a young child, but a grown man who grew up not even knowing or understanding why he felt bad, why he coughed so much that teachers would ask him to leave the class room, why he had no energy and felt pain in his chest. We stride because Greg was a fighter, never giving up, always living his life the way he wanted. Greg read books and researched, even without a high school education. After learning when he was 31 that he had CF, he began research on his own on how to best live with this disease. Because of Great Strides and the CF Foundation, he received some assistance with medication. When first diagnosed there were not as many available treatments. Because of CF, he was not able to work, but he also did not want to be a burden to anyone so I would ration his medications, taking them when he was the sickest. No one should have to live like this! However, he still did the things he loved, he hung out with his friends, he rode his motorcycle, and he built and raced cars. He had a love for life. He was a fighter and we continue the fight to find a cure for CF!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.