I remember the news of the CF gene discovery in 1989 when Lo was only five years old and thinking she and so many other children with CF will have a chance to live well into adulthood. The median predicted age of survival was 29. There was tremendous hope for a cure. That same hope lives on with the recent approval of the triple combination therapy, Trikafta, in October 2019. The approval of Trikafta means that more than 90% of people with CF could eventually have a highly effective treatment for the disease.
Through the Cystic Fibrosis Foundation’s efforts, the life expectancy of people with CF has nearly doubled in the past thirty years, and research to find a cure is more promising than ever. But that’s not enough. It will take the continued support of our community to reach our ultimate goal of a cure. Despite our extraordinary progress in helping people with CF live longer and healthier lives, there is still critical work to be done. There are people living with CF who are not helped by any of our current therapies, and young lives are still being cut short by this disease. We will not rest until we find a cure for ALL people living with cystic fibrosis.
I am walking for Lo again this year on May 16th, and I hope you will support my team, “In Memory of Lo”. Lo was the reason I became involved with CF thirty years ago, and she is why I remain at the Foundation today. I walk to keep Lo’s memory alive and to be part of finding a cure for all people living with CF.
Please support Great Strides in memory of Lo and help make CF stand for Cure Found.
Jo Ann N. Winn