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This year's Great Strides Walk is my 10th birthday party!!!
Shirts will be ready by the end of April, if you ordered. Check with my mom.
I was born with a swollen abdomen and quickly whisked away to the NICU. The following day an emergency exploratory surgery was preformed and my parents learned it was meconium illus. At a little less than two weeks old the doctors told us I had Cystic Fibrosis. I went on to spend 130 days in the NICU, had 3 surgeries, numerous procedures and many ups and downs. I came home weighing in at only 8lbs 7ozs and a mic-key button. My first year home was difficult including three more hospital stays. My weight increased steadily and I fought hard. I was able to have the mic-key button removed and surgically closed a year after NICU discharge.
Daily I take multiple medicines and spend 2.5 hours doing breathing treatments and therapy. Now at 9.5 years old I am happy, strong, sweet, creative, energetic and love to enjoy life! My strength, energy and love for life are contagious. I keep my parents on their toes and try to give them one scare a day as I am a bit of a daredevil!
Thank you for joining my team and celebrating all God has done and is doing through me!!
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.