James was admitted May 2019 with lung function in the 50s - his lowest lung function ever. He was hospitalized again in July.
On his 17th birthday, Trikafta was FDA approved. James started taking it soon after. Within a week his lung function was at 92. Her has been able to maintain long function in the 90s since with no hospitalizations.
THIS is life changing!
THIS is what we've been praying for and why we've been participating in Great Strides all these years.
We keep walking - even virtually this year - because we want every individual with CF to have an experience like James's.
Trikafta doesn't work for everyone.
We're in this until it's done. For everyone.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.