Join our team, Walk the Cure, and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis (CF). They are moms, dads, sisters, brothers, daughters, sons, COUSINS, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
As some of you may or may not know, I have a precious 15 year old cousin, Dayne, who fights CF on a daily basis. I hope and pray that we can stop the progression of his disease very soon. You see, as Dayne gets older CF will make permanent damages to his lungs, pancreas and sinuses. His lung will develop irreversible scarring, his pancreas will build up with thick mucus causing insulin deficiency, or cystic fibrosis related diabetes (CFRD), and he has will need more surgeries to remove obstructions from his sinuses. As it stand, Dayne’s future with CF doesn’t sound so good, does it?
But, there is hope! Right now the Cystic Fibrosis Foundation (CFF) has big pharmaceutical companies joining in the fight with us! The CFF has a unique and highly successful approach to developing drugs for a relatively rare disease. This drug development model, known as venture philanthropy, has created a robust pipeline of therapies that target the disease. It has been a model for other nonprofit health organizations and has been recognized by the National Institutes for Health and the U.S. Congress for its innovative impact. Nearly every approved CF drug available today was made possible because of the Foundation's venture philanthropy approach. The Cystic Fibrosis Foundation’s top priority remains accelerating the development of therapies that target the basic genetic defect. Through these efforts, the life expectancy of a child with CF has doubled in the last 30 years. These efforts include events like Great Strides, partnerships with drug companies, and the generous donations from those helping to achieve the goal of making CF stand for "Cure Found."
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today or join my team and come out and walk on Sunday, May 21st, 2017 the Moonlight Beach walk @ San Dieguito Academy in Encinitas!
To become a member of the team click on the "Join our Team" button!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.