I got a call from the Cystic Fibrosis Foundation only a few months after Lincoln was diagnosed asking if we wanted to start a fundraising team for him. I immediately said no because I was still in shock, extremely depressed and just trying to get through my day with both kids on my own with my husband gone for a couple months. After I hung up, I had the heaviest heart because I knew this was my only way to fight for him. I knew I was emotionally tapped out and I could barely pull myself out of bed but I knew I had no choice but to call out to you all and ask for you to hold us up in support and be the strong that we weren’t as we walked those miles for our baby. I asked for you to donate because with no government support we have to beg for every penny for research to cure this disease. I didn’t have high hopes because I truthfully was just walking through the motions of my life last year. I thought our life as we had known it was over. I didn’t want to wake up in the morning and the walk was the last thing I really cared about. However…something changed after that day. I walked along that beach and I saw people in front of us, behind us, and beside us that loved us and loved our baby. I watched as people shared our page and almost thousands of dollars in donations rolled in. I knew that we weren’t in this fight alone and although our baby has a rough road ahead, we know that when we are weak, we will have a fighter next to us to hold us up and keep us going. So here I am again…year four. The dreaded year they say. They say people see his smiling face and are no longer in shock and stop walking, they stop donating. They say the team dwindles quickly because people can’t see the illness. I don’t believe it and I wont accept it. Last year we had hundreds of donators and about 35 walkers. This year our team will be bigger and stronger and we will raise more because I believe that our journey is transparent enough for you to see this disease is progressive and truly needs a cure so he can live a life he deserves. So please…start to register to walk with our family and help us reach our goals! If you have any questions or a hard time signing up, please reach out to me and I will help sign you up! Walk with us! Donate to our team! Lets get started!!! #LincolnsLifesavers
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.