May is Cystic Fibrosis (CF) Awareness Month. May (9th) is the anniversary of Dayne's CF diagnosis back in 2007. Since April of this year (2018) we have noticed significant improvements in Dayne’s CF symptoms. His nearly constant throat clearing and routine mucus-clearing coughs have noticeably subsided. The 22 digestive enzymes he needs daily are being decreased (hopefully we can someday eliminate them completely). We are seeing improvements in his blood glucose levels when we were expecting to begin insulin this year, while being officially classified as diabetic (CF has their own CF-specific diabetes called CF-related diabetes or CFRD which is very similar to Type 1). His recent annual blood work showed that his levels are the best we’ve ever seen and remarkably now fall in the “normal” range for the first time in his life! We have noticed increased appetite, which we hope means another growth spurt. This all indicates that Dayne's disease progression is dramatically slowing. We have you and all of the Team DayneGerous supporters to thank for this remarkable improvement. With your help, a new Vertex Pharmaceuticals-developed drug, SYMDEKO, came to market in February of 2018. Dayne began taking this drug within a few months and is helping him thrive and has truly given us hope of a future.
Sign up to become a Great Strides Team DayneGerous supporter and let’s move past just controlling CF and actually cure it once-and-for-all!
Click here: http://fightcf.cff.org/goto/TeamDayneGerous2020 and choose “Join This Team,” then set up your personal page and start recruiting your own network to support us!
With our greatest appreciation, Broc, Molly, Jaycee and Dayne Glover
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.