There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
“I didn’t give you the gift of life, life gave me the gift of you” The day Jase was born, was the best day of my life.Little did I know just 48 hours later…all that joy would be taken and replaced with fear, and sadness.Jase was born with meconium ileus, this occurs when the meconium is too thick and sticky to be passed causing a blockage.About 18% or 1 in 5 Cystic Fibrosis (CF) Patients are born with this.Jase required surgery at just 2 days old and had drains placed to help irrigate his bowls for weeks.Before Jase was born we had no idea anything was wrong or anything about CF…fast forward to 2 days old right after surgery; The surgeon looked us in the eye and said “99.9% of babies with this blockage have Cystic Fibrosis.” And walked out of the away.Pretty sure my heart broke right then and there in the NICU.A first time, hormonal, sleep deprived mom starts to Google away…”Progressive Disease? Terminal? Lung Transplants? NO CURE?” How?? In his short 2 ½ years of life.. he has had three major surgeries, 11 admissions adding up to 230 days in the hospital, has been on countless antibiotics and medications, and has a strict medical routine he does daily just to stay healthy.
CF is scary guys…..and we need a cure. Jase deservers a cure.Anybody fighting this aweful invisible disease deservers a cure.I will Not stop fighting for all of them.Please consider donating money or joining our team ‘Jase’s Pride’. Help us spread awareness and to Find A Cure.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.