James turns 21 this year. We know it's a lofty goal, but we're asking for your help in raising $21,000 for James's 21st birthday!
James was admitted to Radys I May 2019 with lung function in the 50s - his lowest lung function ever. He was hospitalized again for the 38th time in July. There was talk of the possibility of needing a lung transplant in the next 5-10 years.
On his 17th birthday, Trikafta was FDA approved. James started taking it soon after. Within a week his lung function was at 92. He has been able to maintain lung function in the 80s with no hospitalizations going on 4 years now!
THIS is life changing!
The picture you see was taken January 31, 2023, when James toured the labs of Vertex with Paul Negulescu, the head of the research center that developed Trikafta.
THIS is what we've been praying for and why we've been participating in Great Strides all these years.
We keep walking even when James is healthy because we want every individual with CF to have an experience like James's.
Trikafta doesn't work for everyone with CF.
We're in this until it's done. For everyone.
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