Ben is a funny, loving, energetic little boy with a chronic lung disease called cystic fibrosis (CF).
CF is a genetic illness that affects the lungs, sinuses, digestive system, and reproductive system. As little as 50 years ago, CF patients did not live to see elementary school. Thanks to fundraising efforts like Great Strides and the Cystic Fibrosis Foundation, the median life expectancy for someone with CF is 47 years. This is still not enough.
In order for someone to be born with CF, his/her parents must both be carriers of a CF-causing gene. Approximately 1 in 30 Americans is a carrier of the CF gene, and like us before Ben's diagnosis, most have no idea.
There are many new therapies and medications in the pipeline right now, but there is currently no cure for CF. This doesn't work for us, so we intend to fight until that changes.
Please join us. Every little bit helps. "Like" our Facebook page at www.facebook.com/bensbrigadeslc, follow us on Instagram @bensbrigade, make a donation, join our team, or just help us spread the word.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.