Hello Friends and Family!
In honor of our daughter, Faith, we are once again fundraising to fight and cure Cystic Fibrosis! Faith is now 20 years-old, and by God's grace, with lots of family/friend support and amazing outcomes of medical research and new therapies, Faith is thriving and enjoying her sophomore year of college in Wenham, MA, at Gordon College.
We only have until April 29th to raise $15,000! I know we can achieve this if we work together. After you make your donation, would you mind please forwarding this invitation to 5 or more people? Feel free to tell them our/Faith's story. And would you please consider seeking out corporate matching opportunities? Thank you!
We will be walking in the Honolulu Great Strides CF walk on SATURDAY, 4/29/23, at Kakaʻako Waterfront Park. Local friends, please join us!
Faith is doing well. Trikafta has eased many of her symptoms. We are so grateful! Trikafta is one of a group of newer CF drugs that target the defective protein in the CFTR gene mutation, making it function much more effectively.
She has been able to travel to Italy, England, and out here to Hawaii a few times, in the last year. In less than two months, she will venture out to Japan for a music-and-missions internship near Tokyo where she will play piano and explore culture
Faith is still studying music at Gordon College in Wenham, MA. We miss her very much but are incredibly thankful for ALLL the advancements in CF care and research, which have made it possible for her to be healthy and to even attend college.
Thank you for continuing to fight CF until every patient has the treatment they need, and until a CURE is found.
Much appreciation, God bless,
The Ettlich Family
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.