Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
“I didn’t give you the gift of life, life gave me the gift of you” The day Jase was born, was the best day of my life. Little did I know just 48 hours later…all that joy would be taken and replaced with fear, and sadness. Jase was born with meconium ileus, this occurs when the meconium is too thick and sticky to be passed causing a blockage. About 18% or 1 in 5 Cystic Fibrosis (CF) Patients are born with this. Jase required surgery at just 2 days old and had drains placed to help irrigate his bowls for weeks. Before Jase was born we had no idea anything was wrong or anything about CF…fast forward to 2 days old right after surgery; The surgeon looked us in the eye and said “99.9% of babies with this blockage have Cystic Fibrosis.” And walked out of the away. Pretty sure my heart broke right then and there in the NICU. A first time, hormonal, sleep deprived mom starts to Google away…”Progressive Disease? Terminal? Lung Transplants? NO CURE?” How?? In his short 2 ½ years of life.. he has had three major surgeries, 11 admissions adding up to 230 days in the hospital, has been on countless antibiotics and medications, and has a strict medical routine he does daily just to stay healthy.
CF is scary guys…..and we need a cure. Jase deservers a cure. Anybody fighting this aweful invisible disease deservers a cure. I will Not stop fighting for all of them. Please consider donating money or joining our team ‘Jase’s Pride’. Help us spread awareness and to Find A Cure.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: