There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
“I didn’t give you the gift of life, life gave me the gift of you” The day Jase was born, was the best day of my life.Little did I know just 48 hours later…all that joy would be taken and replaced with fear, and sadness.Jase was born with meconium ileus, this occurs when the meconium is too thick and sticky to be passed causing a blockage.About 18% or 1 in 5 Cystic Fibrosis (CF) Patients are born with this.Jase required surgery at just 2 days old and had drains placed to help irrigate his bowls for weeks.Before Jase was born we had no idea anything was wrong or anything about CF…fast forward to 2 days old right after surgery; The surgeon looked us in the eye and said “99.9% of babies with this blockage have Cystic Fibrosis.” And walked out of the away.Pretty sure my heart broke right then and there in the NICU.A first time, hormonal, sleep deprived mom starts to Google away…”Progressive Disease? Terminal? Lung Transplants? NO CURE?” How?? In his short 2 ½ years of life.. he has had three major surgeries, 11 admissions adding up to 230 days in the hospital, has been on countless antibiotics and medications, and has a strict medical routine he does daily just to stay healthy.
CF is scary guys…..and we need a cure. Jase deservers a cure.Anybody fighting this aweful invisible disease deservers a cure.I will Not stop fighting for all of them.Please consider donating money or joining our team ‘Jase’s Pride’. Help us spread awareness and to Find A Cure.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.