Dear Friends and Family,
This year, Cruisin' for Clare is celebrating a decade of raising money to support Cystic Fibrosis. Clare is ten years old for the 10th annual Great Strides walk. Due to COVID precautions, the walk was canceled. HOWEVER, the National CF Foundation has launched a “65 Roses” Cystic Fibrosis Challenge to increase awareness for CF while aiming to raise $65M to help find a cure. FYI, The “65 Roses” story dates back to 1965 when an observant 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as "65 Roses."
To that end, the Berg Family is excited to set up a series of “65 Roses Challenges” with the hope of raising awareness for a CF cure for 100% of patients:
*Clare to knit 65 wool squares to produce a “Cure CF” quilt
*Jeff to run 65 miles for the month of September
*Lisa to walk 65 miles for the month of September
*Bobby to string 65 lacrosse heads for youth lacrosse players over balance of 2020
*Alex to do 65 push ups each day for month of September
For those of you new to the walk, our family walks to support Cystic Fibrosis because our daughter Clare was diagnosed with CF at birth. Our boys do not have the disease, however, many families have more than one child with CF. We walk for Clare, and all the families working daily to keep their CF’ers healthy.
Our Great Strides team has raised over $150,000 in 9 years thanks to you. For those of you that do not get to see Clare every day, she is a superstar! She is managing her health as if she were an adult. She knows how many enzymes to take before her meals and she can list all of the medications she uses and why she uses them. She takes an hour out of her day to manage her health. She does two vest treatments a day, nebulizer treatments, and swallows 30+ pills on a daily basis. She is BRAVE during her blood draws & tummy aches. CF doesn’t slow Clare down. Thanks to all of your support, you wouldn't know Clare had CF.
Clare’s passions include spending time with her friends, sleepovers, playing the Ukelele, art of any kind, baking, watching baking shows, Girl Scouts, reading, and helping to train our dog Baxter. She is loving and Loved.
Please consider donating to Cystic Fibrosis in 2020!