We are back IN PERSON for 2022!! Please join us to show Allison, Levi and the 30,000 others in this country, who fight cystic fibrosis every day, that we are in their corner and WE WILL CURE CF!!!
Allison and Levi both have this devastating disease, along with 30,000 other Americans who fight day in and day out. In 2015, when Allison was born and diagnosed with CF, her doctor told me that this is an amazing time to be born with CF. In my new mom haze, I thought he was crazy. Is there ever a GOOD time to be diagnosed with a life shortening brutal illness?? Turns out, 6 years later, I can say he was right.
CF is relentless - it never takes a break. So that means we can't take a break either. Allison and Levi each take about a dozen pills each day, do about 1-2 hours of breathing treatments and they've been social distancing and washing hands constantly since before it was cool ;)
Since 2015, we have seen 3 life saving CF Modulators come to the market. These aren't drugs that treat CF symtoms. These are drugs that treat the disease itself! The latest and greatest drug, Trikafta treats 90% of the CF population. NINETY PERCENT!!! With tears in my eyes, I am so humbled and happy to say that Allison is able to start this drug now that she is 6. Levi will have to wait a little longer but the fact that it is within our reach is mind blowing.
I also write this with great sadness. 90% is an amazing accomplishment and the CF Foundation has made Great Strides since the CF gene discovery in 1989, but this is not a cure. And for 10% of people living with cystic fibrosis, they have no "miracle drug". So we are not done! I can't sit back and say well my kids have their drug, we are done. WE ARE NOT DONE! We don't have a cure!!
This is where you come in. The CF Foundation relies 100% on donations. The drugs that are out there and the drugs that have yet to be discovered are 100% dependent on your donations. We ask you to find it in your hearts to join us in the fight! Become a member of team CF FYTRZ and watch a miracle happen - because it will. The CF story is the greatest story in medicine and we will win!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!