Dear Friends and Family,
This year, Cruisin' for Clare is celebrating a decade of raising money to support Cystic Fibrosis. Clare is ten years old for the 10th annual Greatstrides walk. Due to COVID precautions, the walk was canceled. However, we still wanted to ask for your support. This a monumental year when the FDA should approve the triple combination drug therapy for Clare's age group of 12 and under.
Our family took a trip to Moonlight Beach on the actual day of the walk to see the bioilluminesence, or as Clare calls them the glowing neon waves! Please consider making a donation to our team.
For those of you new to the walk, our family walks to support Cystic Fibrosis because our daughter Clare was diagnosed with CF at birth. Our boys do not have the disease, however, many families have more than one child with CF. We walk for Clare, and all the families working daily to keep their CF’ers healthy.
Our Great Strides team has raised over $150,000 in 9 years thanks to you. For those of you that do not get to see Clare every day, she is a superstar! She is managing her health as if she were an adult. She knows how many enzymes to take before her meals and she can list all of the medications she uses and why she uses them. She takes an hour out of her day to manage her health. She does two vest treatments a day, nebulizer treatments, and swallows 30+ pills on a daily basis. She is BRAVE during her blood draws & tummy aches. CF doesn’t slow Clare down. Thanks to all of your support, you wouldn't know Clare had CF.
Clare’s passions include spending time with her friends, sleepovers, playing the Ukelele, art of any kind, baking, watching baking shows, Girl Scouts, reading, and helping to train our dog Baxter. She is loving and Loved.
Please consider donating to Cystic Fibrosis in 2019!