As many of you know this is my son Jase, he is 7 years old and loves riding his mountain bike, anything outdoors, baseball, and is currently on a dinosaur kick. He is smart, witty, and kind. He will make you laugh until you cry, and brightens any room he walks into.
Jase also has Cystic Fibrosis. We found out at birth that he was born with this life threatening genetic disease. It mainly effects the lungs, sinus, pancreas and GI tract causing a build up of thick sticky mucus. The thick mucus causes frequent lung infections eventually limiting the ability to breathe. In his short 7 years of life Jase has had 6 surgeries, countless hospital stays and doctors visits, takes about 30 pills a day, and does hours of treatments just to stay alive.
There have been many advancements the last few years with miracle drugs for sooooo many people. These were possible with donations from you all! This is where your money goes! Unfortunately Jases mutations are very rare and he doesn't qualify for any of these miracle drugs we still need your help!
We hope you will join us this year as we hope to jump back into in person events! We thank for you joining our fight and make we hope yo find a cure for CF in his lifetime.
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Jase also has Cystic Fibrosis. We found out at birth that he was born with this life threatening genetic disease. It mainly effects the lungs, sinus, pancreas and GI tract causing a build up of thick sticky mucus. The thick mucus causes frequent lung infections eventually limiting the ability to breathe. In his short 7 years of life Jase has had 6 surgeries, countless hospital stays and doctors visits, takes about 30 pills a day, and does hours of treatments just to stay alive.
There have been many advancements the last few years with miracle drugs for sooooo many people. These were possible with donations from you all! This is where your money goes! Unfortunately Jases mutations are very rare and he doesn't qualify for any of these miracle drugs we still need your help!
We hope you will join us this year as we hope to jump back into in person events! We thank for you joining our fight and make we hope yo find a cure for CF in his lifetime.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.