I’m taking on the Great Strides challenge and set a goal to raise $2500 to support CF Research and Support for those with CF. My Grandson Jase is 8 years old and one of the strongest people I know. Jase has two very rare mutations and through research funded by the CF Foundation there have been CFTR Modulators developed that help many with CF to live very much like normal lives, these modulators do not help Jase and those like him with Rare and Non-Sence mutations. He is one of those in the last 10% that we need to find help for.
We are entering our 9th year supporting Great Strides and raising money to find a cure for Jase and those with CF. This last year we were able to reunite with our GREAT CF families and hold our annual walk. It will be live in person again this year at the NAVAL Training Center Park. Jase's Pride encourages all to come out and walk with us and celebrate life on June 3rd with Check-in starting at 0830 and walk at 1000.
There still is no cure for this devastating disease yet and even those with the game changing CFTR Modulator drugs still have a daily fight. There is so much hope for all with CF with new therapies on the horizon that will potentially help all those regardless of mutation.
I'll be posting on Facebook and Instagram of activities and challenges we do, follow me, and occasionally I'll do a FB Live/Video.
You too can join the fight by learning more about CF, following my FB page, telling others and Donating to our cause.
Will you please support me in this cause!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress.
Your gift is 100-percent tax deductible.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: