I’m taking on the Great Strides challenge and set a goal to raise $2000 to support CF Research and Support for those with CF. My Grandson Jase is 7 years old and one of the strongest people I know. Jase has two very rare mutations and through research funded by the CF Foundation there have been CFTR Modulators developed that help many with CF to live very much like normal lives, these modulators do not help Jase and those like him with Rare and Non-Sence mutations. He is one of those in the last 10% that we need to find help for.
We are entering our 9th year of supporting Great Strides and raising money to find a cure for Jase and those with CF. The last two years have been very hard on so many with the COVID pandemic, and to an extent it lumes, but we are learning to live with it. For the last two years we have done virtual Great Strides in San Diego, but this year we are looking to reunite with our GREAT CF families and hold our annual walk. It will be held on June 4th at the NAVAL Training Center Park, Jase's Pride encourages all to come out and walk with us, get involved and donate to raise funds for the CF Fondations Path to a Cure.
There still is no cure for this devastating disease yet and even those with the game changing CFTR Modulator drugs still have a daily fight.
Our ability to raise awareness and funds remains tough this year with the COVID virus still effecting all our lives. It has changed our ability to fund raise, but we are finding ways to stay involved through virtual connections and efforts like this challenge. I'll be posting on Facebook and Instagram of activities and challenges we do, follow me, and occasionally I'll do a FB Live/Video.
You too can join the fight by learning more about CF, following my FB page, telling others and Donating to our cause.
Will you please support me in this cause!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress.
Your gift is 100-percent tax deductible.