I’m taking on the Cystic Fibrosis Foundation Surf & Turf 65 Rose’s Challenge. I have a goal to raise $6500 to support CF Research and Support for those with CF. My Grandson Jase is 6 years old and one of the strongest people I know. Jase has two very rare mutations that the CFTR modulators don’t help. He is one of those in the last 10% that we need to find help for.
I am walking/hiking everyday for 65 days to raise funds for this much needed life sustaining research. Along with that, if I reach my goal of $6500 by Oct 5th, 2020, I will let Jase and his parents shave my head. I haven’t had a haircut in almost 6 months. As well as my Beard and mustache for the last 21 years.
There still is no cure for this devastating disease and even those with the game changing CFTR Modulator drugs still have a daily fight.
Our ability to raise awareness and funds is tough this year with the COVID virus, it has all but eliminated our ability to fund raise, but we are finding ways to stay involved through virtual connections and efforts like this challenge. Follow my progress on my Facebook page
Jamie’s Surf & Turf 65 Rose’s Hair Cut Challenge.
You too can join the fight by learning more about CF, following my FB page, telling others and Donating to our cause.
Please support me!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress.
Your gift is 100-percent tax deductible.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.