My Grandson Jase is 5 years old and one of the strongest people I know. At 5 he has been through multiple surgeries to deal with the affects of CF. Life for a person with CF is so different than anyone can imagine until you are in it. Jase has regular clinic appointsments with a bank of doctors, from Pulmonologist, ENT, Internist, gastrointestinal, not to mention mental health (the stress is exceptional, even for a 5 year old that now understands he is special). His day starts with an hour long treatment session with his (shake/shake) vest treatment and multiple nebulized medicines, so chock up an hour before school, and yes he does this at night too, and when he sick ad one or two more of these treatments every day. He takes medicine to help him digest food and also to make his bowls work properly, this is especially difficult as each person is unique, there is no set standard treatment, trial and error. So we are at the end of January and to give you a picture of what life can be like, Since the beginning of this year, Jase has had 2 pediatrician visits, 1 clinic, 1 ER visit, and 1 ENT visit that resulted in a surgery, and new doctor with mobility specialist to deal with his Gastrointestinal issues, which started on two more new medicines. WE NEED A CURE and we will continue to fight
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for Jase and for all those with CF and hope you will support me in my efforts.
Real progress has been made in the search for a cure, with life changing drugs were approved in 2019 that is a game changer for those with the most common gene defect. But for Jase unfortunately it does not help him as he has two very rare genes. There still is no cure for this devastating disease and even those with this game changing drug still have the same fight, of daily treatments and medications. By walking in Great Strides I am helping add tomorrows to the lives of people living with cystic fibrosis.
Will you fight with me by joining Jases Pride and raising money for the CF Foundation, or support me by making a donation to my Great Strides fundraising campaign today!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.