It is perhaps ironic that this past year has shone a very bright light on the struggles of all those living with cystic fibrosis. Physical distancing, hand sanitizers, and fear of the unknown have been part of our lives for over 20 years. But similar to the recent vaccines developed by scientists that allow us to resume our lives, the same can be said for CF. Just a few months before Covid shut down our world, the FDA approved a triple combination therapy aimed at treating the genetic defect of cystic fibrosis for the most common mutation. And in that moment, a 19 year old promise came true. When my son was first diagnosed, his doctor was honest about the challenges we faced, but was equally careful to give us hope. He promised that eventually modern medicine would catch up to the disease. Now with just three pills a day, Sean is able to take deep, long breaths for the first time in his life. A week after he started Trikafta, Sean exclaimed that he never knew what “great” truly felt like. A year later, his weight and lung function remain the highest they have ever been. And there really are no words to properly express our gratitude. The only thing I can adequately say is that your generosity and support has, quite literally, given us everything. Every birthday candle, every lucky penny, and every single superstitious token that a person can wish upon, I’ve asked for the same thing. Now that I have it (and hopefully without the risk of sounding too greedy) I simply wish for more. The fact of the matter is that 10% of CF patients don’t have access to a drug like Trikafta. More research and therapeutic drugs are necessary for them to one day know the feeling of “great.” It is equally important to point out that Sean still has CF and the challenges it brings to his life. And similar to Sean’s doctor, our family also made a promise that same morning. We vowed to never stop fighting for our son, and 30,000 sons and daughters like him. While this year may still look a little more unusual than past walks, we are proud to offer a virtual walk to all those that want to continue to support our hopes to cure our son’s disease. Please join us on May 15, 2021 as we once again take “Great Strides” to raise vital funds and awareness for CF medical research. Join our team by clicking on the donate or join link, and spend the morning doing something that allows you to celebrate all that science has given us, knowing that next year we will get to do more because of our collective efforts.