My dad tells our family story the best:
"Our son Dayne fights daily, the dreadful life-shortening genetic disease, cystic fibrosis (CF). When he was first diagnosed in 2007, it became a mission of mine to raise both awareness and funding to improve treatments (care and/or medications), and eventually, to find a control or cure.
Through my Breathe Easy Ride events, the motorcycle community rallied to learn about cystic fibrosis and importantly, we raised money to support lifesaving and non-government funded research. Since that time, there have been truly remarkable advancements in care and medications (Read about Vertex Pharmaceuticals breakthrough drug, Trikafta) thanks to the kind hearts and generosity of those who have financially supported this cause.
Sadly, there is still no cure for this devastating disease, and I humbly ask you to please consider making a 100% tax-deductible donation of any size (one that you are comfortable with, and nothing is too small to make a difference) to the Cystic Fibrosis Foundation through our Team DayneGerous."
My cystic fibrosis journey is a bit different. As a little girl, I watched my brother truly suffer and felt his days were limited. This drove me to action by pursuing a career in medical science research. Today I am so proud to work along side the brilliant determined scientists at Vertex Pharmaceuticals who have significantly altered the trajectory of this disease. These amazing individuals work true to their mission. They won't stop until there is a cure.
With heartfelt gratitude,
The Glover Family and worldwide cystic fibrosis community
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: