Hello Friends and Family!
In honor of our daughter, Faith, we are once again fundraising to fight and cure Cystic Fibrosis! Faith is now 20 years-old, and by God's grace, with lots of family/friend support and amazing outcomes of medical research and new therapies, Faith is thriving and enjoying her sophomore year of college in Wenham, MA, at Gordon College.
We only have until April 29th to raise $15,000! I know we can achieve this if we work together. After you make your donation, would you mind please forwarding this invitation to 5 or more people? Feel free to tell them our/Faith's story. And would you please consider seeking out corporate matching opportunities? Thank you!
We will be walking in the Honolulu Great Strides CF walk on SATURDAY, 4/29/23, at Kakaʻako Waterfront Park. Local friends, please join us!
Faith is doing well. Trikafta has eased many of her symptoms. We are so grateful! Trikafta is one of a group of newer CF drugs that target the defective protein in the CFTR gene mutation, making it function much more effectively.
She has been able to travel to Italy, England, and out here to Hawaii a few times, in the last year. In less than two months, she will venture out to Japan for a music-and-missions internship near Tokyo where she will play piano and explore culture
Faith is still studying music at Gordon College in Wenham, MA. We miss her very much but are incredibly thankful for ALLL the advancements in CF care and research, which have made it possible for her to be healthy and to even attend college.
Thank you for continuing to fight CF until every patient has the treatment they need, and until a CURE is found.
Much appreciation, God bless,
the Ettlich Family
-------- (from the Cystic Fibrosis Foundation) -------
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!