Still Doin' It For Drew, but more importantly doing it for Austin, Emily, Lily, Mister and others who have rare mutations of cystic fibrosis.
Drew continues to do well on Trikafta, and for that, my family is eternally grateful. But we know we are not done. We still see many of our larger CF Ohana who either do not qualify for Trikafta due to the CF mutation, or have had to stop taking the existing modulators due to their side effects.
We need your help to develop additional highly effective treatments for all those with cystic fibrosis.
I will not rest until we have a cure.
I routinely quote from Lilo & Stitch - "Ohana means family. And family means no one gets left behind. Or forgotten."
Science is making a difference with drugs like Orkambi, Symdeco, Kalydeco and Trikafta which are helping many of those with the underlying cause of CF.
Science is helping with additional treatments for the symptoms of CF. With additional antibiotics to fight the bacteria that those with CF catch. With advancements in post-transplant treatment to give more years while we continue to look for the cure. Science is able to make the difference because of our fundraising efforts.
Please consider joining us in our fight to find the cure. Any amount you can donate is greatly appreciated!
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