It is that time of year again! Due to sports schedules and celebrations, we have been slow to get started with our Great Strides sign-ups and fundraising. The truth is that it can feel overwhelming to ask for money year after year. But every year, something hits and reminds us why this is so important. This year, it was the attached image. Zero cures. That is where we are today. That is what the dollars are fighting to change.
So much of CF seems invisible, with treatments and testing behind closed doors. I just looked at Buster's vest (a new machine a few years ago), and the total reads 928 hours and 48 minutes. That is over 38 days straight that he has sat attached to that machine. 38 days he could be running around outside, playing football, riding his new mountain bike, or swimming in the ocean.
Every year, Buster gets to see the army of buddies behind him supporting him in his fight against CF. These are the core memories that we turn to on the harder days.This year, although we are not able to walk downtown in Great Strides, we want to invite all buddies to join us to walk the 101 next Saturday morning, June 3. We will meet at Philz Coffee at 10am, walk the coast to Cardiff and return on the rail trail among all of the gorgeous wildflowers. Wear your Buster's Buddies shirt or just wear orange!
We have a lot of treatments to improve the lives of people living with CF, but there is no cure. Will you help us get closer to the day when living with CF no longer takes hours of treatments and 50+ pills a day? To the day Buster can live his life without worrying about his CF on a daily basis? You can help make this dream a reality by donating to our Great Strides fundraising today.
Ten years ago, when I was pregnant and we found out Buster had CF, the median life expectancy was 37. This year, it was announced that it is now 56. 19 years of improvement in 10. We will take it. Our dreams are high for Buster, and we remain positive that we will see a cure for CF in his lifetime. Thank you for fighting with us!!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.