First off, HUGE thanks to many of you who have supported the Berg Family's focus on raising money in search for a cure to CF. Over the last 13 years, our national "Cruisin' for Clare" Great Strides team has raised over $200k to support CF cure research. Its now that time of the year again...please consider joining our Cruisin for Clare team and help us get one step closer to a cure for Cystic Fibrosis for ALL – a rare, genetic, life-shortening disease that makes it difficult to breathe.
When my daughter, Clare, was first diagnosed with Cystic Fibrosis as a baby, the average life expectancy was 12 years old. With drug advancements supported by the CF Foundation, this average age is now 50 and climbing...all driven by fundraising walks like this one! Thank you to all who've walked for Cruisin' for Clare national teams in the past - as we've raised over $200k over the last 13 years together!
Clare has had over a full year of taking the new CF drug, Trikafta. She is experiencing benefits daily - having more energy for school, sports, and everyday activities (she's now active with baskeball, dance, volleyball, and newly found joy of lacrosse!). We are impressed by her full ownership in taking her enzymes with meals and Trikafta in the mornings...a great highlight of her growing maturity. We will be walking for our daughter Clare, and everyone else with Cystic Fibrosis.
Thank you for considering joining our team - we're excited for the walk in a couple of weeks.
Grateful,
Jeff, Lisa, Bobby, Alex, and Clare Berg
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.