This year's Cruisin' for Clare team will be walking at San Diego's Liberty Station NTC park on June 1st at 10:00am PT...please consider joining us (either in person or virutually). As with previous years, our team fundraising helps get one step closer to a cure for Cystic Fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe. Please click on the link below to join my team and/or donate funds:
http://fightcf.cff.org/goto/Cruisin4Clare
Clare has had over two years of taking the new CF drug, Trikafta. She has not been admitted to the hospital since, and has increased her lung function to a new high! She continues to experience the benefits - having more energy for school, sports, and everyday activities (she's now active with dance, volleyball, and Female Athlete Volunteers. We are impressed by her full ownership in taking her medications and doing her treatments while continuing to be a regular teen. We will be walking for our daughter Clare, and everyone else with Cystic Fibrosis.
When Clare was first diagnosed with Cystic Fibrosis as a baby, the average life expectancy was 14 years old (correction from 12 years). With the advancements supported by the CF Foundation, this average age is now 50 years and climbing.
We walk in Great Strides for Clare. Walk. Breathe.
Grateful,
The Berg Family
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.