Shannon Dulawan

Dear Friends and Family

We're getting the Crew back together!  It's been a few years since our last walk, but we will again be lacing up our walking shoes and headed to the beautiful Liberty Station on Saturday, June 4th for this year's Great Strides Walk!  We would love for you and your friends and family to join us.

With the introduction of Trikafta to Cadence's treatment, she has continued to remain healthy and hospital free.  She continues to do 2 vest treatments a day (each 20 minutes long), in addition to handfuls of pills, multiple inhalers and nebulized breathing treatments.  It takes work to keep healthy, and although she begrudges each treatment, she does an amazing job of sticking with it.  

With that being said, we still need to stress the importance of fundraising.  We have access to more medications, however, we still don't have the cure that we desparately need.  Please consider making a donation of any amount to help further that goal of finding the cure!  Thank you in advance for all of your support over the years!  

With Sincerest Gratitude~
Shannon Dulawan