Our passion is bigger than ever as we push for a CF Cure! We are so grateful for the support of each and every one of you! In the past 7 years, you have shared our story, walked beside us and donated!
Will you join Logan and support our mission to make medical history again this year? TODAY is the day that I humbly ask for your donation toward our goal. Any amount is not too small! This year is a big anniversary for the CF Foundation - 65 years stronger! This number has a special place in the Cf community heart so maybe you can spare .65, 6.50, 65.00...in the name of a cure for Logan? Click Donate now below.
With the ever-changing nature of COVD-19, new local restrictions, and to protect the health and well-being of our community, the Great Strides walk will look a little different this year. Celebrate our fighter in a car parade or join us virtually at the Facebook live event!
A little more about Logan and CF in real life...
Under it all Logan bravely fights Cystic Fibrosis every day, 365 days a year.Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe over time.
There is no holiday for the average 3 breathing treatments, 2 sinus rinses, 30+ enzymes/pills every day. We are always "on guard" for the simple cough, sneeze or runny nose! Each cold, virus, infection calls for immediate action and increased treatments as each "simple" illness creates permanent scarring on his lungs.
We are amazed as we watch who Logan is growing to be! He is a fighter and a lover of all things space! This year Logan bravely started Kindergarten, proudly shows off that he swallows 5 large enzymes capsules at once and is taking the lead at doing his own breathing treatments. He shows us he can and WILL do it all! We have been very fortunate that overall Logan has been healthy and we count each day of good health as a victory! To learn more about our daily routine, watch Logan's video from last year: https://youtu.be/eDKRqCqHy58
How does every donation help?
Research dollars are critical to finding and funding a cure for CF. The Foundation, which receives no federal funding, is on the verge of real breakthroughs!
CF Foundation President and previous CEO Dr. Preston Campbell stated, "It's the greatest story in medicine today!"
Logan started taking the new modifier drug Symdeco this past fall. We have seen improvement in his sinus disease and GI but there is more hope on the horizon. There is a newer and better combo drug that could significantly help Logan awaiting FDA approval for his age group! If all goes well Logan could benefit from this drug next year. To learn more about this drug and possibly more impactful research advancements, click here: http://www.cff.org/treatments/Pipeline/
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. The research dollars raised from all of the moms, dads, families and friends before us have funded the breakthroughs that Logan is benefiting from today. 90+ cents of every dollar goes to research! Your gift is 100-percent tax deductible.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.