Faith is now FIFTEEN and in high school! She was on the snowboarding team this year, made the cheer team for next year and plans to continue snowboarding as well. We are hoping to continue walking as a team, too! In all honesty, when she was born and we received her CF diagnosis, I expected our second home to be the hospital, and for SO many CFers that rings all too true. Thanks to the medications she is on, researched and funded by the CF Foundation, as well as her diligence with treatments....Faith has NEVER been hospitalized (yet) AND HER CT SCAN FROM THIS YEAR SHOWED NO LUNG DAMAGE! We are incredibly grateful to people like YOU who have donated, walked, prayed and supported us throughout the years!
2020 will be our SIXTEENTH year walking with Faith as Team FaithFull! We have raised well over $143,000 in that time, made many new friends, helped get CF on the newborn screening test in CA and the newest exciting news is that a second, BETTER combo drug that is undergoing trials for Faith's specific mutation has recently been showing AMAZING improvement in CFers and will hopefully be approved by the FDA this year! That's HUGE news, but it takes $$$ to happen...the investments in the right companies, research, trials, medications, supporting clinics, etc !!!
We fundraise and spread awareness for our daughter Faith (and the thousands of others who battle CF), so she can have the chance to live a HEALTHY, LONG life. It is her right. We all have struggles, but I have watched her over the years take CF in stride, fighting it when she needs to and being patient in tolerating it all the other days of her life. She is truly an inspiration, an angel and my hero. I strive to see and live life more like her. She's hoping to make a new video on her own this year, but you can watch her video from 2016!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.