Faith is now FIFTEEN and in high school! She was on the snowboarding team this year, made the cheer team for next year and plans to continue snowboarding as well. We are hoping to continue walking as a team, too! In all honesty, when she was born and we received her CF diagnosis, I expected our second home to be the hospital, and for SO many CFers that rings all too true. Thanks to the medications she is on, researched and funded by the CF Foundation, as well as her diligence with treatments....Faith has NEVER been hospitalized (yet) AND HER CT SCAN FROM THIS YEAR SHOWED NO LUNG DAMAGE! We are incredibly grateful to people like YOU who have donated, walked, prayed and supported us throughout the years!
2020 will be our SIXTEENTH year walking with Faith as Team FaithFull! We have raised well over $143,000 in that time, made many new friends, helped get CF on the newborn screening test in CA and the newest exciting news is that a second, BETTER combo drug that is undergoing trials for Faith's specific mutation has recently been showing AMAZING improvement in CFers and will hopefully be approved by the FDA this year! That's HUGE news, but it takes $$$ to happen...the investments in the right companies, research, trials, medications, supporting clinics, etc !!!
We fundraise and spread awareness for our daughter Faith (and the thousands of others who battle CF), so she can have the chance to live a HEALTHY, LONG life. It is her right. We all have struggles, but I have watched her over the years take CF in stride, fighting it when she needs to and being patient in tolerating it all the other days of her life. She is truly an inspiration, an angel and my hero. I strive to see and live life more like her. She's hoping to make a new video on her own this year, but you can watch her video from 2016!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.