Our perfect baby boy joined our family on April 2, 2017. Declan Reicher Dakota Dukes. He was such a handsome baby, and we instantly fell in love. His big sister Makenna felt the same way, and tried claiming him for her own. Big brother Jaxton was a little less enthusiastic the first time he met his baby brother at the hospital. We brought Declan home the next day and quickly settled in as a family of five. Everything was going great.
Three weeks later we got a phone call that flipped our world upside down. A pediatric pulmonologist called us to tell us of an abnormality on Declan's newborn screening. He had two defective genes, one passed from each of his parents. The mutated genes along with a sweat test the following week would confirm that Declan was born with cystic fibrosis (CF).
Declan has two different mutations, one common and one not as common. Because of his exact combination (F508 and R117H with a 7T polymorphism), he does not have the more severe, classic case of this disease. He still faces a lifetime of treatments and being more susceptible to chronic lung infections among other things.
Our goal is to raise awareness and funds in order to one day find a cure for this disease. Please come join our team on the walk, donate, or both! If you are unable to do any of these options, spreading the word is appreciated as well.
By the way, he is still our perfect little boy, but he is now two and thriving thanks to the fabulous care he recieves from his CF Team.
To become a member of our team, go to our team page at http://fightcf.cff.org/goto/DeclansDreamers and click on the "Join our Team" button. From there you can make a donation and start your fundraising. By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure. If you are unable to walk, donations are much appreciated as well, no amount is too small! Thank you for your support!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.