Our perfect baby boy joined our family on April 2, 2017. Declan Reicher Dakota Dukes. He was such a handsome baby, and we instantly fell in love. His big sister Makenna felt the same way, and tried claiming him for her own. Big brother Jaxton was a little less enthusiastic the first time he met his baby brother at the hospital. We brought Declan home the next day and quickly settled in as a family of five. Everything was going great.
Three weeks later we got a phone call that flipped our world upside down. A pediatric pulmonologist called us to tell us of an abnormality on Declan's newborn screening. He had two defective genes, one passed from each of his parents. The mutated genes along with a sweat test the following week would confirm that Declan was born with cystic fibrosis (CF).
Declan has two different mutations, one common and one not as common. Because of his exact combination (F508 and R117H with a 7T polymorphism), he does not have the more severe, classic case of this disease. He still faces a lifetime of treatments and being more susceptible to chronic lung infections among other things.
Our goal is to raise awareness and funds in order to one day find a cure for this disease. Please come join our team on the walk, donate, or both! If you are unable to do any of these options, spreading the word is appreciated as well.
By the way, he is still our perfect little boy, but he is now two and thriving thanks to the fabulous care he recieves from his CF Team.
To become a member of our team, go to our team page at http://fightcf.cff.org/goto/DeclansDreamers and click on the "Join our Team" button. From there you can make a donation and start your fundraising. By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure. If you are unable to walk, donations are much appreciated as well, no amount is too small! Thank you for your support!!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.