October 8th, 2019 was the day our little Esther’s life changed forever. It was the day we received the call from the clinic informing us that Esther was diagnosed with cystic fibrosis.
Since being diagnosed we have done our part to fight cystic fibrosis and thanks to the many medical advancements made, our girl has the best chance of living a normal life NOW then she would have 50 years ago.
However the only way to truly give our girl the life she deserves, a life without enzymes, airway clearance, fear of germs and the flu, a life where she can breathe freely, is to find a cure.
Join our team and help us get one step closer to a cure for cystic fibrosis! For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devastating disease. We walk in Great Strides for them.
Will you join us?
Great Strides provides a fantastic opportunity for family, friends, students, and colleagues to come together and make a difference in the lives of people with CF. The event harnesses the power of people with a shared vision and encourages collaboration, team building, and leadership, as we take steps to find a cure. We are at a pivotal moment in the history of cystic fibrosis and your support matters. Let’s keep making Great Strides until we have a cure. To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising. By joining our “Team Salty Babe” and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found! While we have come so far, we still have so much work to do. The lives of people with this disease are still cut far too short.
Thank you in advance for supporting Team Salty Babe!
P.S. Due to Esther’s cystic fibrosis she loses a lot of salt in her sweat, that’s why we call her our Salty Babe.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.