Join our team and help add tomorrows! One year ago, Zachary came into this world. The perfect addition to our family. He is the happiest little guy, aventurours,and easy going.Everyone who meets him, just loves his smiles and his energy.
He has always been full of surprises, and that remained true when we got the call just after his one month checkup that his something was off in his newborn screening. At just two months old Zachary was officially diagnosed with Cystic Fibrosis. I had heard of it, but had no idea what this disease entaled. After a quick google search and key phrases, "life expectancy 40", 'infertile", "deadly" popped up, our hearts were broken. How could we have unknowingly given this perfect little boy this horrible disease.
After the initial shock and sadness, we educated ourselves, reached out to the Cystic Fibrosis foundation, and met with doctors, we found a lot of hope. About a million questions later we learned that the world of Cystic Fibrosis is aggressively changing and what people once knew of the disease, will not be the future of it.
Because of the research and work of this foundation, the Cystic Fibrosis I googled, will not be the Cystic Fibrosis our boy lives with. But we feel compelled to keep the research and momentum going until there is hope for everyone living with Cystic Fibrosis. Our son is fortunate that he will get to benefit from the groundbreaking medication Trikafta, that will hopefully change the face of Cystic Fibrosis, and make it a manageable condition. 10% of the Cystic Fibrosis patients still are looking for their miracle. Adults living with these conditions still need our help. Zachary will always live with this disease and benefit from breakthroughs in treatments and medication.
This year has been a whirlwind. We are so grateful and fortunate for the hope that we have and the health of Zachary. We were overwhelmed with support from everyone who joined our team and donated last year with his initial diagnosis, we really hope to keep that momentum going this year.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease. Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.