Join our team, Tony's Troops and help us get one step closer to a cure for Cystic Fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
Our Son Tony was diagnosed with CF when he was just 2 weeks old. It completly shook our lives. Now 13 years old, he is thriving and living his best life. With the help of the Cystic Fibrosis Foundation, new medication, treatments and therapies have made his CF journey a litte bit easier. Even though having the most common and aggressive CF mutation (Double DF508) , he has been pretty healthly for the most part, only having 2 CF tune ups (2 weeks in the hospital each time), one nasal surgery and a feeding tube (that will soon be coming out). It has been because of the anvancement in medicines, in particular Trikafta which he has been on for a little bit over a year and it has completly change his life, he is thriving more than ever and his future looks bright. It is your support that funds the medical research for medicines, treatment and therapies that have made a huge difference not just in Tony's life but all others with CF. In the last 12 years that we have participated in the Great Stride walk, out team has raised alomost $30,000, THANK YOU!!
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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