Our passion is bigger than ever as we push for a CF Cure! We are so grateful for the support of each and every one of you! In the past 9 years, you have shared our story, walked beside us and have donated BIG! In 2022, we are back and stronger than ever!
Will you join team Love for Logan and support our mission to make medical history again this year? It has been a hard few years for us all and we want to celebrate BIG this year! Logan will be 10 years old and will celebrate his one year anniversary of being on the new corrector drug (Trikafta) this June and we'd love to celebrate by hitting a new milestone...Can we count on you joining our team?
Another exciting, BIG upgrade is the new home of our Great Strides walk - the CHP Academy in West Sacramento! They have opened their closed campus and their big hearts to support our cause. We will get special access to celebrate our CF fighters, walk the nature trail and experience some fun behind the scenes cadet training (did someone say high speed maneuvers on the tactical race track!?!)
Joining our team is so important; showing Logan he has the best community! Even if you can't attend in person we know you are cheering him on in spirti. TODAY is the day that I humbly ask for your donation toward our goal. Any amount makes a big difference! Click "Donate now" below.
A little more about Logan and CF in real life...
Under his quite smile, Logan bravely fights Cystic Fibrosis every day, 365 days a year.Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe over time.
There is no holiday for the average 2 hours of breathing treatments, 2 sinus rinses, 30+ enzymes/pills every day. We are always "on guard" for the simple cough, sneeze or runny nose! Each cold, virus, infection calls for immediate action and increased treatments as each "simple" illness creates the potential for added damage to on his lungs.
We are amazed as we watch Logan growing to be the person he is! He is resilient, strong and a lover of all things space! In 2021, Logan started a new corrector drug, Trikafta. So many fellow CF fighters have seen amazing results with this drug as it corrects root cause of CF at the cellular level. Truly a medical breakthrough! Logan has seen some stabilization in his weight, improvement in his sinus disease and if you look at before and after pictures you can see his skin coloring truly come to life! We are hoping he will experience the longer term benefits from this wonder drug! For now, he maintains his daily breathing treatments, quarterly clinic appointments, quarterly blood draws (the worst!), and 30+ pills a day.
He shows us he can and WILL do it all! We have been very fortunate that overall Logan has been healthy and we count each day of good health as a victory! To learn more about his daily routine, watch Logan's video from last year: https://youtu.be/u5tAL-fogWQ
How does every donation help?
Research dollars are critical to finding and funding a cure for CF. The Foundation continues to be on the verge of real science and medical breakthroughs!
CF Foundation President and previous CEO Dr. Preston Campbell stated, "It's the greatest story in medicine today!"
To learn more about current drug pipeline and possibly more impactful research advancements, click here: https://www.cff.org/research-clinical-trials#drug-development-pipeline-clinical-trials
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. The research dollars raised from all of the moms, dads, families and friends before us have funded the breakthroughs that Logan is benefiting from today. The CF Foundation has been consistently rated as one of the top, most efficient and novel non-protis! Your donation is 100-percent tax deductible.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.