Cystic Fibrosis is a progressive genetic condition effecting the lungs and exocrine systems in the body. Robyn has lived with Cystic Fibrosis her entire life and has benefited directly from the new treatment regimens and medications that have been discovered due to innovations in CF research throughout her lifetime. The Cystic Fibrosis Foundation is a vital part of continuing research and helps offset costs of treatments that would otherwise be unaffordable to all patients who have CF. Team Robyn has walked in Sacramento, San Francisco, San Diego and even Washington DC over the past 10 years to continue to support CF awareness and to fund vital CF research.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond.
This year to ensure a safe event in the times of covid, the Great Strides walk is a virtual event in which you complete the 5k in your own neighborhood. This year Robyn is committing to logging a minimum of 65 miles of walks from home prior to the event day on May 15, 2021. As a team member you can choose to log walks along with Robyn or participate in the 5k on the 15th with her! If you'd like to participate, just click on the "Join this Team" button. From there, you can make a donation and start fundraising.
Please consider making a donation to sponsor our team in hitting our 650 mile goal prior to May 15, 2021! Donations of any size are greatly appreciated.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.