My name is Ethan Dean
I'm 12 years old, and I'm in the 6th grade and I have Cystic Fibrosis. I love to make and edit videos, play video games, and annoy my sister. Overall I'm healthy, but occasionally end up in the hospital when trying to battle a cold or flu.
Cystic Fibrosis is a genetic disease that affects over 70,000 people world wide. It creates a lot of mucus that covers my organs like my lungs, and liver.
Not too long ago I used to take over 40 pills a day to help fight the effects of CF. One of these pills are enzymes that help me digest and absorb nutirents from the food I eat. But with the help of Trikafta, I no longer need to take enzymes! That removed over 20 pills each day!
You wouldn’t know that Ethan has CF just by looking at him. That’s because the damage is done on the inside. Some of things that he’s dealing with are…
Liver Disease -- Ethan takes a medication twice a day to keep his liver in check. With all the meds he takes it adds extra stress to the liver on top of the damage that is being caused by Cystic Fibrosis.
Sinus Infections -- Twice a day he has to have sinus rinses, as well as medications to help keep him clear.
Digestive Issues He often gets “backed up” due to CF which means he has to take extra medicines to help clear him out.
Over the years I have been admitted to the hospital 8 times. The last time was right before Covid and I was stuck there for my longest, 18 days. Hospital stays are the worst part because of IV's and being confined into a small room and don't get much rest.
For almost a year I have been on a new medication called Trikafta that has helped alot. Because of this pill I have been able to gain, and when I was sick, it helped me recover quicker. Also my lung function has improved.
Research and funding for new medication is why it is important to fundraise.
Please support me!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.