My Great Strides Story
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
My SUN, Connor is a twelve-year-old living with cystic fibrosis. Before the genetic modulator, Trikafta, Connor spent the majority of his life hospitalized fighting recurrent respiratory infections and cf related gastroparesis. Before Trikafta, Connor's lung function was at an all-time low of 53% at the age of 9-a clear indicator of disease progression. With Trikafta, he's now breathing at an all-time high of 88% and even got his feeding tube removed last fall! However, Connor's liver has accumulated scar tissue from the years of CF tormenting his young body and is unable to handle metabolizing the full dosage of this life-saving medication.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history. PLEASE help me make CF stand for CURE FOUND and provide my SUN a chance at Living a healthier, longer life.
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