Welcome to the 2021 Sacramento Great Strides Walk! We’re so excited to have you join us this year! You are making such a tremendous impact on helping us fight CF! Thank you so much for what you have done and continue to do. Because of you, last April I received a life changing drug that has transformed my daily life. I want every person with Cystic Fibrosis to experience what I have experienced. Together we can make that happen.
In 2008 I was born with Cystic Fibrosis. I have spent over 1,100 hours a year doing treatment. (That is a minimum of three one hour treatments a day) I have experienced more hospitalizations than I want to count (we actually did lose count). I have a feeding tube, and know my PICC line nurses by name. A PICC line is a ‘special’ IV that travels to the vein outside your heart. When I used to play hockey I would tire quickly and it would take everything I had to make it through a game. I had trouble sleeping and food did not taste that good to me. I can still hardly believe it but all of that has begun to change. I can breath when I play, I can run. Food tastes amazing and I love to eat it. Through it all I have been reminded of and felt the love and support of the amazing team of people that stand by me and inspires me each year to keep fighting and working to maintain my health.
This year I am asking you to join us as we raise money to continue to make strides towards a cure for Cystic Fibrosis. Our collective efforts for the Sacramento Great Strides Walk have helped raise funds towards researching a cure for CF! The money has helped create breakthrough medications, like Kalydeco, Orkambi, Symdeko, and the drug that absolutely changed my life—Trikafta! We are so close to a cure, and are anticipating some additional exciting medications coming soon! It has been an exciting 13 years as we stride towards a cure and improving life for those people battling Cystic Fibrosis. Your donations, advocacy, and participation in Great Strides, are making great things happen! Please continue to join us and support us as we move towards a cure.
I’m looking forward to seeing you participate at our virtual 5K walk/run and car parade. If you have any questions, please feel free to reach out to my mom through email, text, or call! Ican’t wait to celebrate with each of you as we stride one step closer to making CF soon stand for Cure Found!
I look forward to striding with you soon! Thank you so much for your continued support
Newly appointed Team ‘Goin for Owen’ Leader and 2021 Great Strides Ambassador