Hello, my name is owen.
for my whole life I have been battling cystic fibrosis. I am only 11, but there are people in their 50s still battling because there is no cure. I have doubledelta 508 mutation. In a way I am lucky because of this. this is the most common of all CF mutations so there is the most reasearch. Also because I have CF I can do fun stuff like make-a-wish. make a wish is a program that lets people with diseases make a wish and they will grant it. Because I have CF I got to do this. I wanted to fly to detroit and see the red wings play a home game. I thought that was it, they would buy the plane tickets and a hotel. I thought all CF would do is save about 500 dollars. so you could probly imagine I was suprised when a limo showed up at my house at 4 in the morning. I was anouced on all my flights and I got to practice with the team. On game day (which was also halloween) we were supposed to be in row 10 or so. but a usher told us that 2 on the glass seats where avalible and let my dad and I sit in those instead. And I got to go to the red wings family room where he players family were. and I got to do all this because of CF. Now you are probly thinking why would he ever want a cure?!? That is because for almost 3 hours a day I have to do treatment. and I cant do stuff alot of people can like use a public hot tub. plus if I get sick usally it is 2 weeks in the hospital on IV anibiodics. there are great medicines coming out for doubledelta like tricafta. it helps make my body make less mucas so I can breath. But there are other mutatins that dont have meds like this and that is the reason I am fundrasing is to find a cure for all those mutations and my own mutation.
I hope you will all donate and help cure CF!