Zach's Pack

Join our team and help add tomorrows!
Five years ago, Zachary came into this world. The perfect addition to our family. He is the happiest little guy, adventurous, and easy going. Everyone who meets him, just loves his smiles and his energy.

He has always been full of surprises, and that remained true when we got the call just after his one-month checkup that his something was off in his newborn screening. At just two months old Zachary was officially diagnosed with Cystic Fibrosis. I had heard of it, but had no idea what this disease entailed. After a quick google search and key phrases, "life expectancy 40", 'infertile", "deadly" popped up, our hearts were broken. How could we have unknowingly given this perfect little boy this horrible disease.

After the initial shock and sadness, we educated ourselves, reached out to the Cystic Fibrosis foundation, and met with doctors, we found a lot of hope. About a million questions later we learned that the world of Cystic Fibrosis is aggressively changing and what people once knew of the disease, will not be the future of it.
This year Zach has become much more independent with his daily treatments. He knows to take his enzymes with meals and sits through his treatment like a champ. We are so fortunate to not have any hospital stays or major illnesses yet. We have been anxiously awaiting approval of Trikafta. We are so grateful and fortunate for the hope that we have and the health of Zachary. He is our feisty and compassionate CF warrior!
We were overwhelmed with support from everyone who joined our team and donated last year. We were able to raise over $4,000 because of the love and support of many of you.

Because of the research and work of this foundation, the Cystic Fibrosis I googled, will not be the Cystic Fibrosis our boy lives with. But we feel compelled to keep the research and momentum going until there is hope for everyone living with Cystic Fibrosis. Our son is fortunate that he will get to benefit from the groundbreaking medication Trikafta, that will hopefully change the face of Cystic Fibrosis, and make it a manageable condition. 10% of the Cystic Fibrosis patients still are looking for their miracle. Adults living with these conditions still need our help. Zachary will always live with this disease and benefit from breakthroughs in treatments and medication.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.

By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!