Jon Mccall

My name is Erin and my daughter Esther now 3 years old, was diagnosed with cystic fibrosis 2 weeks after she was born in September of 2019.

My world changed completely after the moment I got the call. My husband, Jon, and I had to figure out "what is cystic fibrosis?" and "how do we care for a child with cystic fibrosis?" Challenge after challenge, appointment after appointment, and pharmacy call after pharmacy call we have navigated the CF road. We can happily report that Esther has not had ANY hospitalizations (a big win for most CF parents) and has been able to achieve a healthy status for most of her life.

Despite these successes, I would be dishonest if I didn't admit that I want more for Esther. I want her to be able to have slow mornings, instead of having to start her day with a vest treatment. I want her to be able to enjoy food like everyone else instead of having to do an enzyme tango. I want her to have time to pursue anything that interests her, instead of having to plan every day to include the necessary management medications and treatments she needs. I want cystic fibrosis to be cured.

Your donation MATTERS! The Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress.

Please help us as we continue the fight to make CF stand for CURE FOUND!