Our Son Tony was diagnosed with CF when he was just 2 weeks old. It completely shook our lives. Now 15 years old, he is thriving and living his best life. With the help of the Cystic Fibrosis Foundation, new medication, treatments and therapies have made his CF journey a little bit easier. Even though having the most common and aggressive CF mutation (Double DF508) , he has been pretty healthy for the most part, only having 2 CF tune ups (2 weeks in the hospital each time), one nasal surgery and a feeding tube (that will soon be coming out). It has been because of the advancement in medicines, in particular Trikafta which he has been on for a little bit over 3 years and it has completely change his life, he is thriving more than ever and his future looks bright. It is your support that funds the medical research for medicines, treatment and therapies that have made a huge difference not just in Tony's life but all others with CF. In the last 13 years that we have participated in the Great Stride walk, out team has raised almost $30,000, THANK YOU!!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.