Heidi Provencher

Greetings,

What a change four years makes.  Our life looks very different today. When Owen began taking Orkambi we had no idea how his health would turn around dramatically.  We could not foresee the miracle that we were about to experience. Today Owen is playing golf, snowboarding, and getting ready to obtain his driver's license.  He takes care of his CF with a manageable treatment schedule that we would have never foreseen.   Our fight is not over as there are many who this drug does not help.  There are many regions where this drug is financially prohibitive.  Please help us as we continue to make medical advancements for all those affected by  Cystic Fibrosis.

If you can donate towards our fundraising goals know that your donation will be going to treatment options to help discover a cure for CF regardless of mutation.  The Cystic Fibrosis Foundation has a 4 out of 4 rating on Charity Navigator. Click here to donate now: https://bndfr.com/33ffm

This year we will be walking on April 13th at 8:30 am.  The walk is hosted by the CHP Academy.  The event kicks off along a 3 mile paved path around the beautiful campus.   As always there will be treats and thrills!  Hope you can make it!

Please join us as we celebrate the progress we have made and the milestones we have met.  Help us as we fundraise to provide new medications to those who have not yet been able to experience this miracle.  Partner with us as we stride towards a CURE for all those affected by CF.

 We would love to have you join us!

Love,

Owen, Gary and Heidi

Click here to donate now: https://bndfr.com/33ffm

The Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.



You can support Team Goin' For Owen!



By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.

Click here to donate now: https://bndfr.com/33ffm